Journal of Continuing Education in the Health Professions



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CURRENT ISSUE BACK ISSUES SUBSCRIBE ADVERTISE ABOUT JCEHP FOR AUTHORS JCEHP AWARD SEARCH (Members only) FULL-TEXT		Volume 21 (4) Volume 21, Issue 4, Fall 2001 J Contin Educ Health Prof 2001; 21(4):278-284 ISSUES IN RESEARCH Genetics research and third parties: implications for education in the health professions Eckenwiler LA A b s t r a c t Research that seeks information about the families of participants raises several questions regarding policy and the education of health professionals, including curriculum planning. The limits of individualism in health care and research, the moral grounding of informed consent and privacy and the moral and legal obligations of professionals in respecting them, the scientific promise and ethical perils of "geneticization", and responsible conduct in research are all topics to be included in the education of health professionals. Lessons for Practice Although the concepts of informed voluntary consent and privacy are grounded in the ideal of respect for individual persons, the relational nature of persons holds important ethical implications for seeking consent and protecting privacy in patient care and research. There are significant differences between eugenics and genomics, yet both hold out the dangers of biologic determinism and discrimination. Research involving human participants carries the potential for both subtle and significant harm. Although the system for subject protection exists to prevent this, well-trained investigators are the first line of defense. MeSH Terms: Confidentiality; Education, Professional; Ethics; Genetic Privacy; Genetics, Medical; Health Occupations; Human Experimentation; Informed Consent; Research
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